Wednesday, November 30, 2011
along side I served. No, let me stop you right there! I know exactly what you are thinking, mixed green salad - the usual boring side. Oh no, we did not have mixed greens tonight but...
can you tell what it is? Are you curious? Maybe just a little bit? - It is a roasted root vegetable salad with reduced balsamic vinegar. It turned out fantastic. The entire family liked it - however Mia Rosie loved it. In case you are curious as to how I made it -
1 sweet Walla Walla onion
1 golden beet
several brussel sprouts
Olive Oil, salt, pepper, reduced Balsamic vinegar - or regular balsamic vinegar
- Preheat oven to 350 F -
- Peel, and clean vegetable. Cut the parsnip, beet, and yam in fairly thin, long slices. Break the onion up into chunks
- Toss the vegetables with olive oil and spread them in one layer into a baking sheet, or pan (I use Pyrex dish)
- Bake for at least 30 minutes until vegetables are soft, slightly browned, and sweet
- When done take vegetables out of the oven and let them cool down
- Arrange them in a larger shallow dish. Add salt, pepper, and balsamico to taste
- Serve at room temperature
Nice and sweet plus a nice change of pace at long last :)
Tuesday, November 29, 2011
And guess what?! - Wow! Everybody got their shoes, coats, and backpacks on. The trip to school was a race against time, but I kept reminding them "cupcakes if we get to the classrooms before the tardy bell..." It was a very, very close call. Mia Rose was in her room on time, and yes, Alena also got to her room just right before the tardy bell rang. Whoo-hoo - the promise of cupcakes worked...and I also made it downtown in time.
On the way home, I stopped at Saint Cupcake to pick up two delicious Vegan - Galactosemia safe - Cupcakes for our girlies. Chocolate-chocolate, and carrot - I let the pictures tell you the rest
So dinner tonight - the first meal I made since Thanksgiving - was Linsen, Spaetzle, Wurst (sausages), and green salad. A favorite of all of us, and cool, dreary weather calls for a nice warm, filling meal like it.
|Lentils, spaetzle, and mixed trees for dinner|
Have a great day, all!
Saturday, November 26, 2011
There are endless persons and things to be thankful for. You know, the usual things - all of my family, love, wellness, our health, our home, having plenty of food on the table, being able to travel, the things everyone is thankful for. So I will not reflect on the know about....So here it goes.
I am thankful - beyond words - for Newborn Screening and all the people that put so much hard work in to have the tests implemented in each State. It is - as I am sure all of you know - that without Newborn Screening we most likely would not have our wonderful family. It is only because of the test, because of the lab technicians that worked over the Thanksgiving weekend eight years ago, the physician that tracked us down, the pediatrician who had a gut feeling and not afraid to go by it, and the infectious disease physician that we celebrated Alena's eight Bday this week. Just think about, what could have happened. Think about what could happen if the test would not be mandatory/opt in for every baby. The results could be devastating. I would not have known about the Newborn Screen. - I am thankful for the individuals at www.screenbabies.org who work tirelessly to educate about Newborn Screening. Through Save Babies through Screening organization we learned about additional private newborn screens. By the way - the positive diagnosis for Classic Galactosemia for Mia Rose was received from the private lab. I am however heartbroken, when I remember that the organization was started because a baby died of complications from Classic Galactosemia before the Newborn Screen results were processed. Just heartbreaking....
There is so much more to be thankful for...
Thursday, November 24, 2011
Wednesday, November 23, 2011
It has been rainy all day and I admit to enjoying it. Everything quiets down, and we stayed at home the entire day. A walk around the block - but that was it. Alena and I made her new big puzzle while Mia Rose drew, we finished some presents, the girls had piano lessons and yes, there was also tv time for the girls. Mia Rose assisted in cleaning out the pomegranate while Alena played some more piano. Oh, total bliss...Happy Thanksgiving to all!
Here is our beautiful birthday girl. There is no school this week at the Portland Public School System so we had the day to ourselves to celebrate and have fun. And fun we had!!! We started the day with Brownies - not the perfect breakfast food but it's a once a year occasion and Alena loves chocolate. By the way, I admit to making them out of a box. Yup - not my usual thing but these are so good and free of milk :) I used the Ghirardelli Double Chocolate Brownie Mix and they turned out beautiful and full packed of delicious sweet chocolate flavor.
Next the girls were allowed some rare playtime with my iPad before we went for our second breakfast at Alean's favorite restaurant Jam on Hawthorne. Guess what she ate?
Yup, vegan chai pancakes and a slice of bacon.
The next stop was for a pedicure and manicure before
we headed to Playdate PDX with a couple of friends for some well deserved playing time. For some reason I did not take any pictures there - what was I thinking! - but here is the link. So fun, and they do have Galactosemia friendly foods. The girls all shared a couple of warm Pretzels which were safe for everyone. Just in case you like to know more about Playdate PDX - I highly recommend it for a fun time - here is the link http://www.playdatepdx.com/.
Alena chose Bridgeport in Northwest Portland for dinner - both girls enjoyed their Pizza Dogs while their friends had cheese pizza, and quesadilla.
We ended the day as it began. With chocolate brownies....
Monday, November 21, 2011
Sunday, November 20, 2011
I first sautéed an onion in olive oil, and a finely minced garlic clove as well as a good amount of cumin. Then added some salt and 3-4 tablespoons of tomato paste. Next I added a finely diced sweet potato and half of a golden beet (because I had it left over). Finally a can of black beans - drained - and 2 cans of water. I let it simmer for a little under an hour. Turned out fine for an impromptu kind of dish :)
Saturday, November 19, 2011
Mia Rose is at a Birthday party this afternoon and I stopped at Saint Cupcake to pick up a treat for her. They are serving vanilla cake at the party so I got a vanilla cupcake for her to match the others. And how can I stop at Saint Cupcake to just get one? There were four different vegan options today. Vanilla with vanilla or chocolate frosting, chocolate with chocolate or vanilla frosting, red velvet, and cookies-and-cream. Each one of them amazing - and there are even more Galactosemia "unsafe" cupcakes. Delicious! Take a look - here is the link http://saintcupcake.com/
Our friend loves cheese pizza while Mia Rose and Alena prefer pepperoni - obviously without cheese. We ordered the pizza half with cheese, and the other half no cheese, but pepperoni. The pizza came just as ordered - perfect! Can you see it in this picture?! Girls sitting side by side - one eating cheese, while the other is eating her Galactosemia safe pizza. Both girls know not to eat pizza with cheese. These are moments that are now so - for lack of better words - normal, and something I would not have thought possible almost eight years ago when Alena was first diagnosed.
Friday, November 18, 2011
Maumee Valley Vending Company Issues Allergy Alert on Undeclared Milk in Buffalo Chicken Wedge Sandwiches Containing Cheese
Please let me Know if you would like me to share how I made it. - It really turned out great, and it is packed with veggies. Who does not love greens...
Thursday, November 17, 2011
In any case, we had leak tart for dinner, along a mixed green salad with Pomegranate. And who knew, that the pomegranate was the absolute winner of the night? Well, actually everyone like the tart but Mia Rose declared her love for pomegranate. So delicious...
Wednesday, November 16, 2011
So what about dinner. I made homemade chicken fingers - drenched in egg, and breaded with Panko - French Fries, and Broccoli. The girls were thrilled - OK they were thrilled about the fries -,
and so was Ron. Yay! Much better dinner success than Monday night.
|Homemade chicken fingers, oven fries, and broccoli|
Tuesday, November 15, 2011
I made the chili right before the girls started to work on their homework and let it simmer for a couple of hours. When I then checked it I was so disappointed. It did not meet my expectations at all - so I tried to fix it. Added salt, pepper, Tofutti sour cream, and brought it all to a slow boil. It did somehow do the trick - it then was OK. Ron liked it, and Alena - of course - loved all of the beans. The bread - Ron got it at Grand Central - was amazing, New Seasons Baguette is good, but this one! Oh, and the salad was also good. I added dried cherries for a little twist, and added mustard as well as red wine vinegar - instead of Balsamico - for a change. Mia Rosie by the way favored the salad and bread, just like me :)
So here you have it - the not so perfect dinner :) I just hope tonight's dinner will be more successful...
Monday, November 14, 2011
Our girls have such different taste buds. Mia Rosie loves sandwiches, and she is also happy to eat a PBJ sandwich once in a while. Alena on the other hand, will only eat turkey, ham roll-ups. Never on a sandwich and once in a great while rolled on a tortilla. She needs variety and get quickly bored. Staples are Z-Bars. Alena loves anything chocolate - which Mia Rose on the other hand does not like, she likes the new crunchy Peanutbutter ZBars. Fruit roll-ups, crackers, tortilla chips, pretzels, carrots, soy yoghurt, and soy pudding - chocolate of course.
I just added Star Vegetable Soup to the repertoire, left over soup from dinner, and fruit salad. Last year I thought, that it would be more stressful to pack to lunches everyday. That however has proven - luckily - not to be true...yay...OK enough for now...happy day!
Have a great day all!
Sunday, November 13, 2011
Today was rainy so we went back home for a cozy afternoon. I roasted chestnuts, warmed up cider on the stove while the girls and I were working on crafts. A wonderful way to spend a Saturday afternoon.
Oh, and what about dinner? Yes, we ate more than the chestnuts, which by the way were super hard to peel. But dinner? Ah yes, dinner...we are having a girls only weekend so it was nothing special. No, we did not go out - the three of us talked about it decided on pasta. Plain pasta with olive oil for Alena, pasta with olive oil and a little bit of sauce for Mia Rosie, and pasta with lots of sauce for the mothership. Let's see what we will have for Sunday dinner...
Saturday, November 12, 2011
After the dentist's office we went up to the Oregon Zoo. It was a very foggy day - chilly, cold, dim, and no rain. Perfect day to be outside, get some fresh air, and admire the beautiful animals. I love those days. The skies are foggy, and dim, but the leaves on the trees are shining with their fall colors. There is something very magical about it.
|Alena riding the lion...|
|Mia Rose pushing our friend's stroller...|
So, I have to disappoint in one respect today as there will be no dinner post. It is just us girls today so we had some soup at New Seasons for an early dinner. We may still roast some chestnuts in the oven, or maybe leave that for tomorrow....Happy Weekend all :)
Friday, November 11, 2011
|Alena and her pizza at Bridgeport on Hawthorne|
Thursday, November 10, 2011
|Mia Rosie the little silly girl with her pink vampire teeth - right before helping in the kitchen :)|
Alena's lesson was first yesterday, and Mia Rose wanted to help me in the kitchen. Yay - she first worked on taking dishes out of the dishwasher, and then she was my assistant extraordinaire in putting together the salad dressing. Onions, salt, pepper, paprika, some mustard - she mixed it all together until it was a paste; I added olive oil and balsamico to complete the dressing while she kept stirring. Mia Rose of course had to taste it before she left the kitchen for her lesson...Alena also wanted to help, and she assisted in peeling carrots for our mixed green salad for dinner.
|Alena peeling carrots...|
|Wednesday November 9th, 2011 dinner|
Tuesday, November 8, 2011
Please share and encourage all expecting parents, as well as others to learn about the Newborn Screen. www.savebabies.org educates about Newborn Screening, and where to get supplemental testing. Did you know that the Foundation was started by parents who lost their baby to Galactosemia? It is a heartbreaking story - but with education about Newborn Screening and parents not opting out it will not need to happen again.
Monday, November 7, 2011
Easy, comfort food of homemade three bean beef chili tonight for dinner. Let me tell you, both girls loved it. Remember how much Alena loves beans?
|Three Bean - Pinto, Navey, and Kidney - Beef Chili|
Sunday, November 6, 2011
|Alena and Mia Rose hanging out at the Portland Art Museum today|
Here she is Mia Rose with her helper Steffi and the Laterne that they made for the Laternenlauf this coming Tuesday. The Laterne is a "Maus" on one side and an "Elefant" on the other side. Super, super cute...Oh, and if you would like to find out who the "Maus" is check out this link -> www.wdrmaus.de Even so it is all in German I am sure you can see what a great character and show it is...
Saturday, November 5, 2011
Today the girls were in Saturday School from late morning until 12:30 and by the time we were back home it was time for an early dinner/late lunch. Our meal today was...
|Pork in cream sauce, with white rice, baked root vegetable medley, and green salad|
Pork in "cream" sauce, with plain rice, baked root vegetable medley - golden beets, carrots, and onion - and a mixed salad. For desert the girls enjoyed a couple of scoops of Purely Decadent Turtle Ice "Cream" - dairy free - by Turtle Mountain...Yummy!!!
Friday, November 4, 2011
|Alena is ready for dinner...|
Ron and I enjoyed an adult beverage while the girls happily played in the fantastic play corner. For food the ladies ordered "Hot Dogs" with you know what a.k.a. French Fries. Of course there were lot's of condiments added especially Mia Rose who is our condiment lover...
|Mia Rose enjoying her pretzel!|
Thursday, November 3, 2011
Oh, look at the result of the "no knead" bread. And yes, it is just as yummy as it looks and only has four ingredients. Flour, yeast, salt, and water.
|"No knead" bread|
To recreate it you need:
- one cup of soaked, dried beans (I use a 12 dried bean mix from New Season's Market)
- splash of Olive Oil
- medium onion diced
- 2-3 carrots diced
- large can of diced tomatoes
- 32 oz of chicken or veggie broth (I use Pacific Foods)
- one small yam cut into cubes
- two medium potatoes cut into cubes
- a couple of bay leaves
- salt and pepper to taste
- 1 pound of bulk italian sausage (I use mild)
- soak the beans the night before you plan to make the soup
- in a large pot heat up the olive oil. When hot, add the onion, and carrots as well as a sprinkling of salt. Sautee until onions are soft, and carrots begin to show yellow center.
- add can of diced tomatoes, and the vegetable broth
- next add the soaked beans (drained - do not add the soaking liquid)
- then add
- Potatoes, and
- Bay Leaf
- Bring soup to a slow simmer and cover.
- form small meatballs from the bulk sausage, and
- carefully fry them until browned in a pan
- Let soup simmer for about an hour - while "no knead" bread is baking in the oven.
- Add salt and pepper to taste
|Twelve bean, veggie soup with Italian Meatballs|