Friday, July 30, 2010
We had our metabolic appointment on Tuesday and I had to pick-up the girls early. Neither was excited about the appointment out of fear that there would be a pain involved... To mix things up a little bit and make it fun, we did not drive up to OHSU today, but took the aerial tram. Both were excited to ride the tram...oh, and if you do not live in Portland and wonder what I am talking about here is the link to the aerial tram http://www.portlandtram.org/. The tram connects the upper and lower part of OHSU. It is quite amazing, and on a clear day you can see Mt. Hood :)
Our visits was great as usual. It did however stand out, from previous visits because this time we got the green light to expand on cheeses for the girls. Our new dietitian was very prepared and brought along the abstract of a British research study concluding which cheeses the British deem as safe. This fall adding Gruyezer, Emmenthaler, and Grana Padano Parmesan to the Parmesiano Regiano.Yay!!! FYI - Jarlsberg is also on the list, but I however am not a great fan.... Kaesspaetzle (= home made egg noodles baked with Emmenthaler & Gruyezer topped with browned onions) will meet new friends :)
Jokes aside - I am so thrilled to finally get the official green light on these cheeses from our Metabolic Clinic. Europeans have long advocated for Galactosemics to eat aged cheeses due to the calcium. And I do admit, that both kids have eaten Emmenthaler, as well as Gruyezer before just in small amounts. I limited the amounts as I was not certain how much would beOK....
What about you? Do you allow, or eat aged cheeses? Will you allow it? Do you like it? Does it worry you? I would love to hear from you!!!
Tuesday, July 27, 2010
Besides meeting J.R. we went swimming in the Columbia River, cooked on the campfire, and the girlies roasted marshmallows. Swimming in the Columbia and cooking on the campfire were a first for us. Let's just say that both were amazing. Swimming was so much fun, and our meal was the best we have ever had when camping. What did we make you ask? Well, we made Fajitas. We brought our cast iron pan along, I chopped the onions, peppers, and Ron cooked it all one by one on the campfire. Topped it with lime juice, and served it with corn tortillas. That was a true winner :)
Here are some pictures....
|Ron putting up our tent|
|Alena is enjoying the water|
|Ron and Alena swimming|
|Here we are meeting J.R. Beaver|
|The four of us :)|
Friday, July 23, 2010
Yoga at the beach...what could be better - well, besides roasted marshmallows
Ron and Mia Rose are visiting the water....
Mia Rose is loving bacon....
We are having fun....
Thursday, July 22, 2010
Thursday, July 15, 2010
girls were initially very suspicious of the cream. Well, neither knew
what "numb" meant. Alena went first for the draw and did not feel a
thing. Same thing for Mia Rose...yay!!!
Afterwards we had lunch at the Farmer's Market where both girls ate
the best Italian Sausages, followed by crafts at a booth for kids, and
ended the day with manicures. Alena asked later "Mama, can we go have
a blood draw soon again?" Who knew
Have a happy day everybody!
Wednesday, July 14, 2010
Tomorrow, however should be different because they are getting the anesthtic cream for the first time. Fingers crossed that their veins won't narrow, and that the phlobotomist will be able to draw....updates to follow.
Friday, July 2, 2010
Thursday, July 1, 2010
DOMEGA NY INTERNATIONAL CO., LTD Issues Allergy Alert on Undeclared Milk Powder in FUMA CUSTARD PIE
Thu, 01 Jul 2010 12:29:00 -0500
DOMEGA NY INTERNATIONAL CO. LTD 4820 2nd AVE BROOKLYN NY 11232 is recalling FUMA CUSTARD PIE because it may contain undeclared milk powder. Consumers who are allergic to milk powder may run the risk of serious or life-threatening allergic reactions if they consume this product.
I have to admit that neither Potlucks nor catered outdoor picnics used to be my favorite event. No, I certainly do no dislike the outdoors - quite different I love being outdoors - but I have always been worried about the food options for the girls. Truth be said, so that is not the way I believe we should live. Exclude ourselves because I worry that there may a ton of foods the girlies cannot eat...That is not what I believe in. But you know what? That is what I was doing. I got frustrated because at catered lunches people are generally not aware of Allergens. Much less even at potlucks. People don't think about allergens. And you know what? I would not be thinking about them either - it was something I never understood in my "Pre Galactosemia" life.
In any case, have come up with some strategies to deal with these fun events. No different from any of our other strategies really...here they are:-
For catered events I try to
- find out as much as possible about the menu up front,
- call the company to discuss allergens
- call the organizers to find out about desserts
- are there dairy free options? Will we have to bring alternatives?
If all fails I bring food for the girls but that is really the last I want to do. I want the kids to feel included and not different.
For Potlucks - and they are much harder - the strategy is to
- call the organizer to determine what types of food people will be bringing
- ask organizer to have foods marked with ingredients used - and I mention the allergen issue.
- I know that sounds like a lot to ask for - but just basic ingredients. I certainly do not ask that recepies be amended just for us...I am not that self centered. Well at least, I try not to be ...
Now, I feel prepared and am happy to say "Potluck I no longer fear you"!!!
How do you deal with this? I would love to hear from you!
Happy Summer to all of you!!!
Texas Firm Recalls Cervelat Sausage Product due to an Undeclared Allergen
Wed, 30 Jun 2010 18:42:50 -0500
San Antonio Packing Company, a San Antonio, Texas, establishment, is recalling approximately 9,408 lbs. of Cervelat Summer Sausage because it may contain an undeclared allergen, milk.